The cramp fasciculation syndrome some patients experience is caused by a potassium ion channelopathy. The symptoms which led to my diagnosis of CFS, however, are a direct result of the atypical myotonia congenita with which I've just been diagnosed. Treating the symptoms of my genetic disorder means treating the symptoms of CFS, as well as all those symptoms of mine that have, until now, defied categorization. For that reason, it's unlikely that I will continue to update this blog.
I'll keep the old material available. Feel free to link to or quote from this blog or the sister blog, Another Invisible Illness; I do ask, however, that you acknowledge the source and the author, Another Invisible.
Right now, I do not see myself keeping a blog about atypical myotonia congenita or sodium channel disorders. However, because there are so few patients with these disorders and research can be so hard to come by, I have created a forum for those who might be interested in supporting each other and sharing information. Although those who wish to participate in the more personal discussions are required to register, links to research and resources are available to the general public. I won't do a lot in the way of moderating the board; I plan to post links now and then and make sure postings and member names fall within the forum guidelines, but that's it.
I'd like to offer my sincere thanks to all of you who have followed the blog and wished me well. I hope that it has been, and will continue to be, helpful to others.
Best wishes to all of you,
Another Invisible
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